Services for Adults with autism in kirklees mental health report, Kirklees

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Summary of report content

Healthwatch Calderdale investigated issues being raised by a number of people in Calderdale and Kirklees with diagnosed or undiagnosed Autism Spectrum Conditions (ASC), with regards to the services they were being offered. Information obtained from 3 ASC support groups and 19 completed surveys from adults with ASC and 16 from the parents, partners, or carers of adults with ASC, all based in Kirklees. Key concerns raised included: • Lack of GP awareness and understanding about autism • Difficulties getting GPs to refer the person with ASC for assessment • Long waiting times for assessments and diagnosis • Lack of clinical support post diagnosis • Mental health services and lack of understanding of autism • GPs with a poor understanding about female ASC traits • Positive feedback regarding examples of support from Community Psychiatric Nurses (CPNs) and Care Workers Improve experiences: • Easier access to diagnostic services and shorter waiting times • Better education and awareness about ASC for GPs, practice staff and the public • Access to a Social Worker specialising in ASC with the right skills and understanding • Support from people they know and can trust • Autism friendly places and safe zones • Crisis support when it is needed • Long term autism support for a lifelong developmental condition • A range or menu of options for people with ASC to choose from • Accessible and varied peer support groups and courses for people with ASC Recommendations: • Kirklees Clinical Commissioning Group (CCG) to use the feedback from people with ASC to help design and commission better services • How to make GP practices more ASC friendly, including use of the Royal College of GP’s new toolkit of resources • Review the mental health support available in Kirklees as suitable for adults with ASC, or whether adaptations need to be made to enable them to access mental health services, including timely support in a crisis • Identification and flagging up of parents, partners and carers of people with ASC so that they can receive extra support if they need it.

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General details

Report title 
Services for Adults with autism in kirklees mental health report, Kirklees
Local Healthwatch 
Healthwatch Kirklees
Date of publication 
Tuesday, 6 June, 2017
Date evidence capture began 
Tuesday, 6 June, 2017
Date evidence capture finished 
Tuesday, 6 June, 2017
Type of report 
Report
Key themes 
Access
Communication between staff and patients
Staff training
Support
Waiting time to be seen once arrived at appointment
Other information of note about this report 
Carers
Healthwatch reference number 
Rep-6518

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
What type of organisation requested the work 
N/A
Primary research method used 
Survey
How was the information collected? 
Visit to provider
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Primary care services 
GP practice
Secondary care services 
Counselling/improving access to psychological therapies (IAPT)
Mental health services 
Depression and anxiety service
Mental health crisis service
Older peoples mental health community service
Social care services 
Assessment
Community services 
Community based services for people with mental health needs
Other services 
Patient transport

Details about conditions and diseases

Conditions or diseases 
Diabetes and other endocrinal, nutriotional and metabolic conditions
Types of long term conditions 
Learning disability
Mental health condition
What type of pregnancy or maternity themes are included in the report 
Pregnant

Details of people who shared their views

Number of people who shared their views 
35
Age group 
Not known
Gender 
All
Ethnicity 
All
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
Yes
Types of health and care professionals engaged 
Care / support workers
Does the information include other people's views? 
Not known
What was the main sentiment of the people who shared their views? 
Negative

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
Not known
Is there evidence of impact external to the report? 
Not known

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.