Right By You! Evidence in existing experience and engagement literature

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Summary of report content

Wessex Voices (Healthwatch Dorset, Hampshire, Isle of Wight, Portsmouth and Southampton) reviewed existing public, patient and carer engagement and experience intelligence from local and national sources. This was used to answer some initial questions posed by the Wessex Cancer Alliance Right by You! Steering Group to inform their approach to further engagement around local cancer support services. 

Overall, people are happy with the care and treatment they receive whilst in hospital, with much praise in general for staff and carers. 

However, recommendations for improvement focus on:

  • Good communication and signposting to relevant, holistic information at the right time in the right way are the two key issues that come up throughout people's cancer journey. The level of support people need during their recovery various enormously, as does the length of time that support needs to be in place. 
  • People want clear, easy to understand personalised care plans covering the whole pathway. 
  • Many people feel their emotional needs are not being met and end of life care needs to be tailored to meet the needs of individuals and their circumstances. 
  • Seldom heard groups experience disadvantage in their access to and experience of cancer services and therefore need specific consideration in the design and evaluation of services.

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General details

Report title 
Right By You! Evidence in existing experience and engagement literature
Local Healthwatch 
Healthwatch Dorset
Healthwatch Hampshire
Healthwatch Isle of Wight
Healthwatch Portsmouth
Healthwatch Southampton
Date of publication 
Tuesday, 1 October, 2019
Date evidence capture began 
Thursday, 1 August, 2019
Date evidence capture finished 
Wednesday, 30 September, 2020
Type of report 
Local analysis
Key themes 
Access
Communication between staff and patients
Health inequalities
Information providing
Quality of care
Other information of note about this report 
Careplan
BME

Methodology and approach

Was the work undertaken at the request of another organisation? 
Yes
What type of organisation requested the work 
Other (please specify)
Primary research method used 
Structured interview
Survey
Unstructured Interview
User stories
How was the information collected? 
Research
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Secondary care services 
Cancer services

Details about conditions and diseases

Conditions or diseases 
Cancer
Types of long term conditions 
Cancer in the last 5 years
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Age group 
All
Gender 
All
Ethnicity 
All
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
Does the information include other people's views? 
Not applicable
What was the main sentiment of the people who shared their views? 
Mixed

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.