Parkinson's provision

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Summary of report content

Healthwatch Stoke-on-Trent gathered service user perspective and feedback about key areas of service provision for Parkinson’s disease in and around Stoke-on-Trent. This is after service users and professionals expressed their concerns at the lack of access to these services and the lack of confidence in staff such as GPs and Parkinson’s nurses. This resulted in patients not being able to cope well especially with different Parkinson’s patients having differ needs, and there is no patient centred approach. Healthwatch consulted with a few organisations such as the Neurological Alliance and Parkinson’s UK and other professionals that worked with patients to design a questionnaire. 250 questionnaires were distributed of which 116 were returned. The findings show only 40% of respondents with advanced Parkinson’s agree that they are able to access services as they need to; 28% responded that their GP didn’t seem confident to offer advice about Parkinson’s and only 32% of those with advanced stage Parkinson’s describe it as well controlled. Another crucial finding was that 42% of respondents reported having had their mental health affected by the disease overall, in advanced patients this rose to 64%. Healthwatch made several recommendations which are detailed in the report. Tiered support to be explored in order to ensure that those with advanced Parkinson’s get the help they need, and more help and advice should be more easily available to GP’s to help them to support Parkinson’s patients. Awareness of the condition should be heightened amongst hospital staff and Parkinson’s patients should be signposted to mental health services more effectively.

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General details

Report title 
Parkinson's provision
Local Healthwatch 
Healthwatch Stoke-on-Trent
Date of publication 
Thursday, 12 March, 2015
Date evidence capture began 
Thursday, 12 March, 2015
Date evidence capture finished 
Thursday, 12 March, 2015
Type of report 
Report
Key themes 
Access
Communication between staff and patients
Quality of care
Quality of treatment
Healthwatch reference number 
Rep-5436

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
Primary research method used 
Survey
How was the information collected? 
Outreach
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Primary care services 
GP practice
Community services 
Community based services for people with mental health needs

Details about conditions and diseases

Types of long term conditions 
Mental health condition
Other

Details of people who shared their views

Number of people who shared their views 
116
Age group 
All
Gender 
All
Specific ethnicity if known 
All
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Not known
Does the information include staff's views? 
No
Does the information include other people's views? 
No
What was the main sentiment of the people who shared their views? 
Negative

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
No
Is there evidence of impact external to the report? 
No

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.