Health and social care needs of people with Long Covid

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Summary of report content

This report presents the lived experiences of people with Long COVID, identifying their ongoing symptoms and the response from health and social care services to meet their needs. It builds on the findings with recommendations to local health and social care service providers and commissioners.

Healthwatch Nottingham and Nottinghamshire and Self-Help UK were partially funded by the East Midlands Academic Health Science Network, to work with people who have Long COVID symptoms; and to develop their skills in survey design, analysis and report writing. The aim was to gather their experiences and report the findings to local health and social care service providers and commissioners.

A focus group was held in February 2021 with a small group of people experiencing Long COVID symptoms. The themes identified in the focus group shaped the question design of an online survey. HWNN gathered the views of 37 people from across Nottingham and Nottinghamshire in March 2021.

The findings are discussed in line with the common themes that members of the Facebook COVID-19

Survivor’s group identified and wanted to research. These themes included:

  • Whether they were tested for COVID-19?
  • Who they first contacted for treatment for COVID-19 and their experience of care?
  • Whether they were hospitalised and their experience of care?
  • The ongoing symptoms they are still experiencing.
  • What support from health and social care would be helpful to meet their needs?

A total of seven people took part in the focus group, three of whom went onto to become volunteer researchers and attended the questionnaire design, analysis and report writing training and inputted into the design of the online survey. The survey was shared with members of the COVID-19 Survivors Facebook Group and more widely among statutory and voluntary organisations and the networks of Healthwatch Nottingham and Nottinghamshire and Self-Help UK. A total of 37 people responded to the online survey.

HWNN made a number of recommendations following this research.

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General details

Report title 
Health and social care needs of people with Long Covid
Local Healthwatch 
Healthwatch Nottinghamshire
Date of publication 
Tuesday, 7 September, 2021
Date evidence capture began 
Friday, 1 January, 2021
Date evidence capture finished 
Wednesday, 31 March, 2021
Key themes 
Access
Digitalisation of services
Health inequalities
Health promotion
Holistic support
Information providing
Lifestyle and wellbeing
Quality of care

Methodology and approach

If this work has been done in partnership, who is the partner? 
Self-Help UK; East Midlands Academic Health Science Network
Primary research method used 
Focus group
Survey

Details of health and care services included in the report

Primary care services 
GP practice
Secondary care services 
Acute services with overnight beds
Outpatients
Respiratory medicine
Community services 
Other
Urgent and emergency care services 
NHS 111

Details about conditions and diseases

Types of long term conditions 
Other

Details of people who shared their views

Number of people who shared their views 
37
Age group 
25-64 years
65-85 years
Gender 
Female
Male
Not known
Ethnicity 
Black/ African / Caribbean / Black British
Mixed / multiple ethnic groups
Not known
White
Sexual orientation 
Bisexual
Heterosexual
Homosexual
Prefer not to say
What was the main sentiment of the people who shared their views? 
Negative

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.