Health and Care Experience Profiles: a qualitative research methodology for the integration index

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Summary of report content

Healthwatch England in partnership with NHS England have published a qualitative research methodology as part of the Local Integration Index.

This methodology, titled ‘Health and Care Experience Profiles’ can be used to ensure people’s experiences of integration are used by local systems to track how services are working together locally. The methodology involved Healthwatch England looking at all the national level user experience data held on each of the groups and at the policies which set out what sort of care these people should be getting.

Local Healthwatch piloted this methodology in Cambridgeshire, Cheshire East, Cheshire West, Ealing, Hounslow, Manchester, Peterborough, and West Sussex. The pilots focussed on five groups with particular health and care experience profiles, who had experiences of care across several joined-up services. These profiles were:

 

  • Children and young people with mental health support needs who are becoming adults 
  • People with diabetes of South Asian origin 
  • People with learning disabilities who have recently been in hospital 
  • Black men with a number of health needs including a recent experience of cancer 
  • Women with a number of health needs including a recent experience of a heart condition

Local Healthwatch undertook research into local data about policies and spoke to a small number of people from these groups and asked them to talk about their experiences of care. People were also asked about their ideas for improvement, which the NHS and social care services are expected to use to make changes wherever possible

The underlying principles of this methodology can now be used by the NHS and its partners to find out how any group of people might be experiencing care across different services. The Local Healthwatch network across the country is perfectly placed to act as a local delivery partner and can be commissioned to help carry out this work.

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General details

Report title 
Health and Care Experience Profiles: a qualitative research methodology for the integration index
Local Healthwatch 
Healthwatch England
Date of publication 
Friday, 11 June, 2021
Date evidence capture began 
Tuesday, 1 September, 2020
Date evidence capture finished 
Wednesday, 31 March, 2021
Key themes 
Health inequalities
Holistic support
Integration of services
Quality of care

Methodology and approach

Was the work undertaken at the request of another organisation? 
Yes
What type of organisation requested the work 
Other government body
If this work has been done in partnership, who is the partner? 
NHS England
Primary research method used 
Engagement event
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Primary care services 
GP practice
Secondary care services 
Cancer services
Cardiology
Diabetic medicine
Psychiatry/mental health (hospital services)
Mental health services 
Community mental health team (CMHT)
Learning disability service
Community services 
Community based services for people with a learning disability

Details about conditions and diseases

Conditions or diseases 
Cancer
Cardiovascular conditions
Diabetes and other endocrinal, nutriotional and metabolic conditions
Types of disabilities 
Learning or understanding or concentrating
Mental health
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Number of people who shared their views 
Not applicable
Age group 
Not known
Gender 
Not known
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Not applicable
Does the information include carer's, friend's or relative's views? 
Not applicable
Does the information include staff's views? 
Not applicable
What was the main sentiment of the people who shared their views? 
Neutral

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Not applicable
Does the information contain a response from a provider? 
Not applicable
Is there evidence of impact in the report? 
Not applicable
Is there evidence of impact external to the report? 
Not applicable

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.