Feedback about people with hyper-mobility syndromes on health and social care

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Summary of report content

Healthwatch Calderdale decided to undertake research into the health and social care problems of people with hyper-mobility syndromes after hearing that their experiences of health and care were particularly poor. They ran focus groups and a survey, speaking to 183 people in total.

The research looked at difficulties in getting a complete diagnosis, referrals and waiting times, communication between health professionals, their lack of knowledge about these conditions.  People with hyper mobility syndromes shared ideas of what would make health and care better for them, and how their health condition impacted on their quality of life.

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General details

Report title 
Feedback about people with hyper-mobility syndromes on health and social care
Local Healthwatch 
Healthwatch Calderdale
Date of publication 
Monday, 11 January, 2021
Date evidence capture began 
Thursday, 1 February, 2018
Date evidence capture finished 
Sunday, 30 June, 2019
Type of report 
Report
Key themes 
Access
Communication between staff and patients
Diagnosis
Holistic support
Lifestyle and wellbeing
Referrals
Service delivery organisation and staffing
Staff attitudes
Staff training
Waiting times and lists for treatment
Healthwatch reference number 
Rep-8033

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
Primary research method used 
Focus group
Survey
How was the information collected? 
Research
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Primary care services 
GP practice
Secondary care services 
Outpatients
Social care services 
Adult social care

Details about conditions and diseases

Conditions or diseases 
Musculosceletal conditions
Neurological conditions

Details of people who shared their views

Number of people who shared their views 
183
Age group 
All
Gender 
All
Ethnicity 
All
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
Does the information include other people's views? 
No
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
No
Is there evidence of impact external to the report? 
Not known

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.