By analysing over 11,000 conversations the Healthwatch network has had with the public about this issue, we found five common areas where people wanted to see improvement.
These problems - which included a lack of information and not always being listened to by professionals - are known by the health system but the solutions are not always clear.
We wanted to find out from people what they thought the way forward might be. So we commissioned our research workshops to find out.
Download the full findings of the research workshops or download a summary of what people told us.
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