Wessex Cancer Alliance Patient, Carer and Public Experience and Engagement Literature Review

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Summary of report content

The Wessex Cancer Alliance asked Wessex Voices (Healthwatch Dorset, Hampshire, Isle of Wight, Portsmouth and Southampton) to research and produce an independent literature review of recent local and national patient, carer and public experience and engagement to inform their response to the NHS Long Term Plan.

Whilst there was only a short space of time to gather and analyse information, Healthwatch feels that the review identifies and draws together in one place useful, common themes from this intelligence. (For more information about how we did this and our recommendations resulting from it see Appendix A).

The findings are documented under the headings of “Prevention and Screening”, “Earlier and Fast Diagnosis”, “Access to Optimal Treatment”, and “Personalised Care” (including End of Life), as set out in the Cancer Alliances Five Year Deliverables guidance.

The research identifies gaps in patient and public involvement (PPI) intelligence that may need further exploration. It draws out lessons learnt from the review exercise; makes recommendations to improve intelligence sharing around cancer related PPI; and makes some recommendations to the WCA about retaining a strong commitment to meaningful coproduction across all areas of its future work to enable it to be person-centred.

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General details

Report title 
Wessex Cancer Alliance Patient, Carer and Public Experience and Engagement Literature Review
Local Healthwatch 
Healthwatch Dorset
Healthwatch Hampshire
Healthwatch Isle of Wight
Healthwatch Portsmouth
Healthwatch Southampton
Date of publication 
Thursday, 1 August, 2019
Date evidence capture began 
Saturday, 1 June, 2019
Date evidence capture finished 
Wednesday, 31 July, 2019
Type of report 
Local analysis
Key themes 
Access
Communication between staff and patients
Information providing
Quality of care
Other information of note about this report 
Carers
BME

Methodology and approach

Was the work undertaken at the request of another organisation? 
Yes
What type of organisation requested the work 
Other (please specify)
Primary research method used 
Focus group
Structured interview
Survey
Unstructured Interview
User stories
How was the information collected? 
Research
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Secondary care services 
Cancer services

Details about conditions and diseases

Conditions or diseases 
Cancer
Types of long term conditions 
Cancer in the last 5 years
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Age group 
All
Gender 
All
Ethnicity 
All
Sexual orientation 
Not known
Other population characteristics 
Refugees or asylum seekers
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
Does the information include other people's views? 
Not known
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
No
Is there evidence of impact external to the report? 
Not known
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.