Trafford Tired of Explaining Experiences of Services for ME CFS Patients in Trafford and Greater Manchester Apri

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Summary of report content

Healthwatch Trafford created a survey to find out the experiences of patients in Trafford that have Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) following complaints and concerns that had been reported to them. They created a survey and distributed it via social media, email, ME/CFS charities and paper forms. In total there were more than 1000 responses, with 915 from the United Kingdom including 47 from Trafford specifically, and 147 from Greater Manchester. The report gives seven recommendations in the following areas: 1. General Practitioners require thorough training on ME/CFS 2. Diagnosis times to be improved 3. Information on ME/CFS to be improved and standardised 4. Clear mapping of services 5. Improvements in the appointments offered 6. Help patients understand how to access their medical records 7. Improved training and facilities in hospitals for inpatient stays

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General details

Report title 
Trafford Tired of Explaining Experiences of Services for ME CFS Patients in Trafford and Greater Manchester Apri
Local Healthwatch 
Healthwatch Trafford
Date of publication 
Friday, 17 March, 2017
Date evidence capture began 
Monday, 1 April, 2019
Date evidence capture finished 
Thursday, 31 March, 2016
Type of report 
Key themes 
Booking appointments
Building and facilities
Communication between staff and patients
Complaints procedure
Consent to care and treatment
Continuity of care
Health and safety
Health inequalities
Information providing
Integration of services
Lifestyle and wellbeing
Patient records
Quality of appointment
Quality of care
Quality of regulation
Quality of staffing
Quality of treatment
Service delivery organisation and staffing
Staff attitudes
Staff levels
Staff training
Waiting times and lists for treatment
Healthwatch reference number 

Methodology and approach

Was the work undertaken at the request of another organisation? 
What type of organisation requested the work 
Primary research method used 
How was the information collected? 
If an Enter and View methodology was applied, was the visit announced or unannounced? 

Details of health and care services included in the report

Primary care services 
Diagnostic and/or screening service - single handed sessional providers
GP practice
Secondary care services 
Acute services with overnight beds
Acute services without overnight beds / listed acute services with or without overnight beds
Inpatient care
Pain management clinics
Psychiatry/mental health (hospital services)
Mental health services 
Depression and anxiety service
Social care services 
Adult social care
Urgent and emergency care services 
Accident & emergency

Details about conditions and diseases

Conditions or diseases 
Chronic fatigue syndrome

Details of people who shared their views

Number of people who shared their views 
Age group 
All people 18 and over
Other population characteristics 
People who are long-term unemployed
People with limited family or social networks
Does the information include public's views? 
Does the information include carer's, friend's or relative's views? 
Does the information include staff's views? 
Does the information include other people's views? 
What was the main sentiment of the people who shared their views? 

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Does the information contain a response from a provider? 
Is there evidence of impact in the report? 
Is there evidence of impact external to the report? 
Not known

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.