Trafford Tired of Explaining Experiences of Services for ME CFS Patients in Trafford and Greater Manchester ApriDownload (PDF 2.87MB)
Summary of report contentHealthwatch Trafford created a survey to find out the experiences of patients in Trafford that have Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) following complaints and concerns that had been reported to them. They created a survey and distributed it via social media, email, ME/CFS charities and paper forms. In total there were more than 1000 responses, with 915 from the United Kingdom including 47 from Trafford specifically, and 147 from Greater Manchester. The report gives seven recommendations in the following areas: 1. General Practitioners require thorough training on ME/CFS 2. Diagnosis times to be improved 3. Information on ME/CFS to be improved and standardised 4. Clear mapping of services 5. Improvements in the appointments offered 6. Help patients understand how to access their medical records 7. Improved training and facilities in hospitals for inpatient stays
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Trafford Tired of Explaining Experiences of Services for ME CFS Patients in Trafford and Greater Manchester Apri
Date of publication
Friday, 17 March, 2017
Date evidence capture began
Monday, 1 April, 2019
Date evidence capture finished
Thursday, 31 March, 2016
Type of report
Building and facilities
Communication between staff and patients
Consent to care and treatment
Continuity of care
Health and safety
Integration of services
Lifestyle and wellbeing
Quality of appointment
Quality of care
Quality of regulation
Quality of staffing
Quality of treatment
Service delivery organisation and staffing
Waiting times and lists for treatment
Healthwatch reference number
Was the work undertaken at the request of another organisation?
What type of organisation requested the work
Primary research method used
How was the information collected?
If an Enter and View methodology was applied, was the visit announced or unannounced?
Primary care services
Diagnostic and/or screening service - single handed sessional providers
Secondary care services
Acute services with overnight beds
Acute services without overnight beds / listed acute services with or without overnight beds
Pain management clinics
Psychiatry/mental health (hospital services)
Mental health services
Depression and anxiety service
Urgent and emergency care services
Accident & emergency
Conditions or diseases
Chronic fatigue syndrome
Number of people who shared their views
All people 18 and over
Other population characteristics
People who are long-term unemployed
People with limited family or social networks
Does the information include public's views?
Does the information include carer's, friend's or relative's views?
Does the information include staff's views?
Does the information include other people's views?
What was the main sentiment of the people who shared their views?
Were recommendations made by local Healthwatch in the report?
Does the information contain a response from a provider?
Is there evidence of impact in the report?
Is there evidence of impact external to the report?