Supporting people to become active participants in their health and care

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Summary of report content

Healthwatch Leeds worked in partnership with Leeds City Council (Public Health) and partners to find better ways to support individuals and their carers to understand the health information they receive about their care and treatment. They gathered feedback about people's experience of receiving health information through a short survey with a focus on those groups who experience disproportionately low or inadequate health literacy. Altogether, they spoke to 97 people.

A number of people told us they were not asked about their communication needs or that their preferred communication needs were not met. Over half (58%) of respondents needed help either sometimes or often to understand the health information they had received. Some people felt they could not ask questions at their appointment. People with multiple conditions or complex health problems faced additional barriers when making decisions about their health and care. There was support for the tools, the most popular being 'It's OK to ask'.

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General details

Report title 
Supporting people to become active participants in their health and care
Local Healthwatch 
Healthwatch Leeds
Date of publication 
Tuesday, 26 October, 2021
Date evidence capture began 
Friday, 1 January, 2021
Date evidence capture finished 
Sunday, 28 February, 2021
Key themes 
Communication between staff and patients
Information providing
Quality of care

Methodology and approach

Was the work undertaken at the request of another organisation? 
What type of organisation requested the work 
Local Council
Primary research method used 
Focus group
If an Enter and View methodology was applied, was the visit announced or unannounced? 

Details of health and care services included in the report

Primary care services 
GP practice
Secondary care services 

Details about conditions and diseases

Types of disabilities 

Details of people who shared their views

Number of people who shared their views 
Age group 
Not known
Not known
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Does the information include carer's, friend's or relative's views? 
Does the information include staff's views? 
What was the main sentiment of the people who shared their views? 

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Does the information contain a response from a provider? 
Not applicable
Is there evidence of impact in the report? 
Is there evidence of impact external to the report? 
Not known
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.