Support for adults with ADHD

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Summary of report content

Healthwatch York created a report in March 2017 on the experiences of services of people with Attention Deficit Hyperactivity Disorder (ADHD). They attended meetings with Solution Orientated Adult ADHD Carers (SOAAC) and utilised their report, which gave detailed insight into the challenges faced by carers and family members of people with ADHD. Healthwatch York also held two focus groups with carers of people living with autism and / or ADHD, to understand their experiences. In addition to this, they also also held one to one meetings with a number of individuals with ADHD. The work was done following a number of individuals asking questions about diagnosis and ongoing support for adults with ADHD and autism at a conference looking at mental health in York, as well as carers approaching Healthwatch York for support (particularly through SOAAC) and individuals living with ADHD approaching them looking for information and advice, and sharing their stories. The report identifies a number of key issues, including: - The fact there is no simple test to diagnose ADHD, meaning sometimes delayed or missed diagnosis. - General misunderstanding of the condition among the public and some professionals, who may see it as 'bad' or 'irresponsible' behavior, leading to alienation of those with the condition. - There are few specialist NHS services for adults with ADHD. - A lack of consistent advice about good nutrition for people with ADHD. Five recommendations were made in the report including: - Commissioners and Providers commit to working together with people with ADHD to find a creative (if necessary) and sustainable solution to provide support services for adults with ADHD in the York area. This should include considering the needs of people with ADHD in newly emerging pathways around low level / community based support for people experiencing mental ill health. - Consider the creation of a multi-agency task group to look at how a ‘system wide’ pathway to provide the efficient and effective pathways regarding support for people with ADHD and their carers can be developed. - A patient/service user reference group should be established with links to the task group to embed co-production approaches and to develop peer support networks locally.

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General details

Report title 
Support for adults with ADHD
Local Healthwatch 
Healthwatch York
Date of publication 
Wednesday, 15 March, 2017
Type of report 
Report
Key themes 
Access
Communication between staff and patients
Continuity of care
Diagnosis
Health promotion
Holistic support
Information providing
Integration of services
Lifestyle and wellbeing
Medication
Quality of treatment
Referrals
Service delivery organisation and staffing
Staff attitudes
Support
Healthwatch reference number 
Rep-5692

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
If this work has been done in partnership, who is the partner? 
Solution Orientated Adult ADHD Carers (SOAAC)
Primary research method used 
Consultation
Engagement event
Unstructured Interview
User stories
How was the information collected? 
Engagement Event

Details of health and care services included in the report

Secondary care services 
Psychiatry/mental health (hospital services)
Mental health services 
Child and adolescent mental health services (CAMHS)
Community mental health team (CMHT)
Learning disability service
Mental health crisis service
Mental health recovery service
Community services 
Community based services for people with mental health needs

Details about conditions and diseases

Types of disabilities 
Learning or understanding or concentrating
Mental health
Long term condition
Types of long term conditions 
Another long-term condition
Learning disability
Mental health condition

Details of people who shared their views

Number of people who shared their views 
21
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
Yes
Types of health and care professionals engaged 
All care professionals
Does the information include other people's views? 
Not known
What was the main sentiment of the people who shared their views? 
Negative

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
No
Is there evidence of impact external to the report? 
Not known

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.