Summary of report contentHealthwatch York created a report in March 2017 on the experiences of services of people with Attention Deficit Hyperactivity Disorder (ADHD). They attended meetings with Solution Orientated Adult ADHD Carers (SOAAC) and utilised their report, which gave detailed insight into the challenges faced by carers and family members of people with ADHD. Healthwatch York also held two focus groups with carers of people living with autism and / or ADHD, to understand their experiences. In addition to this, they also also held one to one meetings with a number of individuals with ADHD. The work was done following a number of individuals asking questions about diagnosis and ongoing support for adults with ADHD and autism at a conference looking at mental health in York, as well as carers approaching Healthwatch York for support (particularly through SOAAC) and individuals living with ADHD approaching them looking for information and advice, and sharing their stories. The report identifies a number of key issues, including: - The fact there is no simple test to diagnose ADHD, meaning sometimes delayed or missed diagnosis. - General misunderstanding of the condition among the public and some professionals, who may see it as 'bad' or 'irresponsible' behavior, leading to alienation of those with the condition. - There are few specialist NHS services for adults with ADHD. - A lack of consistent advice about good nutrition for people with ADHD. Five recommendations were made in the report including: - Commissioners and Providers commit to working together with people with ADHD to find a creative (if necessary) and sustainable solution to provide support services for adults with ADHD in the York area. This should include considering the needs of people with ADHD in newly emerging pathways around low level / community based support for people experiencing mental ill health. - Consider the creation of a multi-agency task group to look at how a ‘system wide’ pathway to provide the efficient and effective pathways regarding support for people with ADHD and their carers can be developed. - A patient/service user reference group should be established with links to the task group to embed co-production approaches and to develop peer support networks locally.
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Support for adults with ADHD
Date of publication
Wednesday, 15 March, 2017
Type of report
Communication between staff and patients
Continuity of care
Integration of services
Lifestyle and wellbeing
Quality of treatment
Service delivery organisation and staffing
Healthwatch reference number
Was the work undertaken at the request of another organisation?
If this work has been done in partnership, who is the partner?
Solution Orientated Adult ADHD Carers (SOAAC)
Primary research method used
How was the information collected?
Secondary care services
Psychiatry/mental health (hospital services)
Mental health services
Child and adolescent mental health services (CAMHS)
Community mental health team (CMHT)
Learning disability service
Mental health crisis service
Mental health recovery service
Community based services for people with mental health needs
Types of disabilities
Learning or understanding or concentrating
Long term condition
Types of long term conditions
Another long-term condition
Mental health condition
Number of people who shared their views
Does the information include public's views?
Does the information include carer's, friend's or relative's views?
Does the information include staff's views?
Types of health and care professionals engaged
All care professionals
Does the information include other people's views?
What was the main sentiment of the people who shared their views?
Were recommendations made by local Healthwatch in the report?
Does the information contain a response from a provider?
Is there evidence of impact in the report?
Is there evidence of impact external to the report?