Spotlight on Long Covid

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Summary of report content

Healthwatch Medway tell the stories of five people who have long Covid. They held an online focus group.

People dealt with their initial diagnosis very individually depending on their character and what support they had around them.  None had been hospitalised with Covid, but all sought medical help. Their experience varied from responsive to dismissive.

All five were still dealing with significant life changing symptoms which affected their day to day lives, even those that had initially contracted the disease in early 2020.  Symptoms included breathlessness, brain fog, a high temperature, feeling dizzy and exhausted. All the participants felt their symptoms had affected their mental health and family relationships. 

They had all tried to contact their GP for support.  They had different experiences, even for those at the same surgery. Some participants had been referred to hospital but hadn’t heard back.

All participants felt more support would help them, particularly to make them less lonely.  They also wanted more medical support.  None felt particularly hopeful about the future.

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General details

Report title 
Spotlight on Long Covid
Local Healthwatch 
Healthwatch Medway
Date of publication 
Wednesday, 5 May, 2021
Key themes 
Communication between staff and patients
Holistic support
Lifestyle and wellbeing
Quality of care
Staff attitudes
Waiting times and lists for treatment

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
Primary research method used 
Structured interview
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Primary care services 
GP practice
Secondary care services 
Outpatients

Details about conditions and diseases

Conditions or diseases 
Respiratory conditions
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Number of people who shared their views 
5
Age group 
Not known
Gender 
Not known
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
No
Does the information include staff's views? 
No
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
No
Does the information contain a response from a provider? 
Not applicable
Is there evidence of impact in the report? 
Not applicable
Is there evidence of impact external to the report? 
Not applicable

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.