Spotlight on dementia

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Summary of report content

Throughout the summer and autumn of 2015 Healthwatch Hampshire embarked on a large scale outreach project looking into the experiences of people living with dementia, their families, carers and professionals. The evidence gathered on our database of feedback strongly indicated that people living with dementia and their families were finding it difficult to access the support they required, particularly as the disease progressed and increased pressure is faced by family members who provide care. The findings in the report relate to key themes around signposting to support after diagnosis, information about financial support and inconsistency of care in the home. Healthwatch Hampshire recommend one point of access for signposting and support information. Healthwatch feel that the best placed organisations to do this is the Dementia Advisor Service (DAS). Patients should be referred at diagnosis to their local DAS who will have access to all local services and information about relevant financial support. This should be done via e-mail or telephone so that they can make contact with the patient and follow up on progress. All new health and social care settings commissioned, built or re-designed should consider the needs of patients with dementia and become ‘dementia friendly’. If a setting is suitable and accessible for someone with dementia then it is very likely to be accessible for everyone else. All staff who come into contact with people living with dementia should have adequate awareness training. Healthwatch Hampshire would recommend that all commissioners encourage GP surgeries to become dementia friendly. The iSPACE model is a good example of how this could be achieved but other options are available.

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General details

Report title 
Spotlight on dementia
Local Healthwatch 
Healthwatch Hampshire
Date of publication 
Thursday, 1 October, 2015
Date evidence capture began 
Monday, 1 June, 2015
Date evidence capture finished 
Thursday, 1 October, 2015
Type of report 
Report
Key themes 
Health promotion
Information providing
Service delivery organisation and staffing
Support
Healthwatch reference number 
Rep-6268

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
What type of organisation requested the work 
N/A
If this work has been done in partnership, who is the partner? 
Alzheimer’s Society and Andover MIND
Primary research method used 
Engagement event
How was the information collected? 
Engagement Event
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Social care services 
Adult social care

Details of people who shared their views

Number of people who shared their views 
Not known
Age group 
Not known
Gender 
Not known
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
No
Does the information include staff's views? 
No
Types of health and care professionals engaged 
N/A
Does the information include other people's views? 
No
What was the main sentiment of the people who shared their views? 
Negative

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
Yes
Is there evidence of impact external to the report? 
No
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.