#SpeakUp: Autism Hope Sheffield

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Summary of report content

This is a report on research undertaken by Autism Hope using a micro grant from Healthwatch Sheffield.  The purpose is to hear from groups that are trusted partners in their communities to ensure that their voices are heard by decision makers.

Autism Hope are a support group for parents and carers of children with autism. The research involved a survey of 37 parents who had accessed support for their autistic children.  The research looks at:

  • The demographics of the parents
  • The diagnoses that their children had received
  • How the children had been diagnosed
  • How they had accessed support from services
  • Whether they had accessed support as a parent carer.

The report contains 12 recommendations about diagnosis, support, education and involving parent carers.

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General details

Report title 
#SpeakUp: Autism Hope Sheffield
Local Healthwatch 
Healthwatch Sheffield
Date of publication 
Friday, 10 December, 2021
Key themes 
Access
Communication between staff and patients
Diagnosis
Holistic support
Integration of services
Lifestyle and wellbeing
Quality of care
Service delivery organisation and staffing
Staff attitudes
Waiting times and lists for treatment

Methodology and approach

Was the work undertaken at the request of another organisation? 
Yes
What type of organisation requested the work 
Other local body
Primary research method used 
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Primary care services 
Dentist (non-hospital)
GP practice
Secondary care services 
Inpatient care
Outpatients
Psychiatry/mental health (hospital services)
Mental health services 
Child and adolescent mental health services (CAMHS)
Social care services 
Children services

Details about conditions and diseases

Types of disabilities 
Social / behavioural
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Number of people who shared their views 
37
Age group 
25-64 years
65-85 years
85 +
Gender 
Female
Male
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
No
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
No
Is there evidence of impact external to the report? 
Not known

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.