Healthwatch Blackburn with Darwen carried out this project between Autumn 2021 and Spring 2022 to gather the experiences of residents suffering from Long Covid. The aim of the project was to understand the range of symptoms people were experiencing, the impact on both their physical and mental health and their experiences of accessing support for Long Covid. 101 people responded to a survey.
The main symptoms experienced by residents, with a significant impact on their daily lives, are fatigue, breathlessness, brain fog, mobility issues and anxiety. Whilst 56% of respondents’ symptoms improved within 9 months, 19% took 10-12 months to recover and 24% of respondents were experiencing Long Covid symptoms for over a year.
Long Covid impacts residents’ lives far beyond the physical symptoms. Most of the respondents reported that their mental health had deteriorated because of both the condition and its impact on their lives and relationships. This shows mostly through anxiety and depression, as well as irritability and low mood. From feedback given from residents, their lives are significantly impacted by Long Covid in many ways: their employment, caring duties, social lives and domestic duties become neglected following high levels of fatigue. For many, it is has become impossible to carry on with lives as normal.
The report contains 8 recommendations.
Residents' experiences of living with Long Covid
Healthwatch Blackburn with Darwen
Date evidence capture began
Date evidence capture finished
Communication between staff and patients
Quality of care
Was the work undertaken at the request of another organisation?
Primary research method used
If an Enter and View methodology was applied, was the visit announced or unannounced?
Secondary care services
Ear, nose and throat
Nutrition and dietetics
Mental health services
Community mental health team (CMHT)
Types of long term conditions
What type of pregnancy or maternity themes are included in the report
Number of people who shared their views
Prefer not to say
Asian / Asian British
Black/ African / Caribbean / Black British
Mixed / multiple ethnic groups
Other ethnic group
Specific ethnicity if known
Gypsy or Irish Traveller
White and Black African
Does the information include public's views?
Does the information include carer's, friend's or relative's views?
Does the information include staff's views?
What was the main sentiment of the people who shared their views?
Were recommendations made by local Healthwatch in the report?
Does the information contain a response from a provider?
Is there evidence of impact in the report?
Is there evidence of impact external to the report?