A report on feedback in relation to Autism - Healthwatch Cornwall

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Summary of report content

Healthwatch Cornwall (HC) has received more than 62 patient feedback stories that relate specifically to Autism and Asperger’s so far in 2014. This feedback has been collected through outreach events across the county as well as a targeted outreach event held in partnership with Spectrum. The majority of the feedback relates to the diagnosis process (Primary care) and the support once a diagnosis made (Community and Social Care). A number of feedback comments are in the report to give better understanding on what people are telling Healthwatch Cornwall. Support received from the initial contact with a GP through to follow on support after diagnosis has been recorded as missing or non-existent for a large percentage of people that Healthwatch Cornwall had spoken to. Lack of training around Autism and Asperger’s for Primary care staff (GP and Dentists) is a common comment. Minimal support for family’s and people with ASD in the community is another well commented on theme with no support for families (respite) once somebody has received a diagnosis. People have used the word stranded and alone to describe how they feel.

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General details

Report title 
A report on feedback in relation to Autism - Healthwatch Cornwall
Local Healthwatch 
Healthwatch Cornwall
Date of publication 
Thursday, 1 January, 2015
Date evidence capture began 
Thursday, 1 January, 2015
Date evidence capture finished 
Thursday, 1 January, 2015
Type of report 
Report
Key themes 
Communication between staff and patients
Diagnosis
Support
Healthwatch reference number 
Rep-5241

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
Primary research method used 
Survey
How was the information collected? 
Survey

Details of health and care services included in the report

Primary care services 
Dentist (non-hospital)
GP practice
Community services 
Community based services for people with a learning disability
Community based services for people with mental health needs

Details of people who shared their views

Number of people who shared their views 
62
Age group 
All
Gender 
All
Ethnicity 
All
Specific ethnicity if known 
All
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
What was the main sentiment of the people who shared their views? 
Negative

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.