Replacing the Autism pathway for 5 - 18 year olds across South Tees

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Summary of report content

HW South Tees adopted autism and learning disability as a local priority following consultations in 2019, to support implementation of the NHS Long Term Plan.

In June 2019, HW South Tees included their local intelligence in a consultation report, contributing to the development of a national Core Capabilities Framework to train and raise awareness of autism and learning disability with all relevant professionals.

HW South Tees have continued to build on dialogue with parent carers and young people to ensure those with lived experiences are at the forefront of shaping local provision. Joint conversations have taken place across a range of partners to develop a new pathway for children with autism and ADHD (Attention Deficit Hyperactivity Disorder), aged between 5 and 18, which will replace the current autism pathway from 1 April 2021.  Tees Valley Clinical Commissioning Group (TVCCG) are leading these changes.

New ways of working will involve a ‘needs led’ approach, providing a ‘Bubble of Support’ for families, from the point of referral and throughout this age span.  TVCCG provided information about the new pathway. As an independent stakeholder within these partnerships, HW South Tees were asked to engage with parent carers about their experiences of the current pathway, so that family experiences directly influence the new pathway.  This work was undertaken during October 2020.

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General details

Report title 
Replacing the Autism pathway for 5 - 18 year olds across South Tees
Local Healthwatch 
Healthwatch Middlesbrough
Healthwatch Redcar & Cleveland
Date of publication 
Thursday, 1 April, 2021
Date evidence capture began 
Thursday, 1 October, 2020
Date evidence capture finished 
Saturday, 31 October, 2020
Key themes 
Continuity of care
Diagnosis
Referrals

Methodology and approach

Primary research method used 
Focus group
Survey

Details of health and care services included in the report

Primary care services 
Diagnostic and/or screening service - single handed sessional providers
Secondary care services 
Psychiatry/mental health (hospital services)
Mental health services 
Child and adolescent mental health services (CAMHS)
Learning disability service

Details about conditions and diseases

Types of disabilities 
Learning or understanding or concentrating
Social / behavioural
Long term condition
Types of long term conditions 
Learning disability
Mental health condition

Details of people who shared their views

Number of people who shared their views 
107
Does the information include carer's, friend's or relative's views? 
Yes

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.