People living with long term conditions

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Summary of report content

Healthwatch Devon was requested by North East West Devon Clinical Commissioning Group to survey people with a long-term condition to inform the development of a model of care that puts patients with long-term conditions at the centre. Healthwatch Devon developed and distributed surveys, both online and in paper form. 571 responses were received in total. The report included minutes from the 13 October North Devon and Torridge Be Involved Devon Coming Together meeting. The results from this focus group were included in the Key Findings. The findings revealed that 63% of respondents considered the care and support they received for their long-term condition as good or excellent, however, 1 in 5 considered the care and support they received as poor or very poor. Most respondents felt well-supported in managing their conditions. The report highlighted some issues around the sharing of information between health and social care services. The findings also revealed that most respondents did not have an agreed Personal Care Plan, and many had not discussed one with a health or social care professional. It was noted by respondents that better communication about Personal Care Plans would be helpful. The report made several recommendations focusing primarily on additional support for individuals to use personal health budgets and improving access to test results.

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General details

Report title 
People living with long term conditions
Local Healthwatch 
Healthwatch Devon
Date of publication 
Monday, 1 December, 2014
Type of report 
Key themes 
Healthwatch reference number 

Methodology and approach

Was the work undertaken at the request of another organisation? 
What type of organisation requested the work 
Primary research method used 
How was the information collected? 
If an Enter and View methodology was applied, was the visit announced or unannounced? 

Details of health and care services included in the report

Primary care services 
GP practice

Details about conditions and diseases

Types of disabilities 
Long term condition

Details of people who shared their views

Number of people who shared their views 
Age group 
Sexual orientation 
Does the information include public's views? 
Does the information include carer's, friend's or relative's views? 
Does the information include staff's views? 
Types of health and care professionals engaged 
Does the information include other people's views? 
What was the main sentiment of the people who shared their views? 

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Does the information contain a response from a provider? 
Is there evidence of impact in the report? 
Is there evidence of impact external to the report? 

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.