Patient experiences and views about palliative and end of life care

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Summary of report content

In 2018, Healthwatch Herefordshire conducted a report on patients’ experiences and views regarding palliative and end of life care. Fourteen individuals shared their experiences of palliative and end of life care and their personal views of what they would wish for at the end of their own lives. Six participated in focus groups, five responded to an online survey and three gave 1:1 feedback. The report will form part of the evidence that will be submitted by and gathered from representatives of local services connected with end of life and palliative care. The following settings were considered: Care at home, care homes, hospices and hospitals and many individuals related more than one experience. The stories gathered have been streamlined to form the overall recommendations of this report. The report makes many detailed recommendations relating to patient involvement in decisions about their care, care planning, patient access to high quality care, access to the appropriate services at the right time, funding, joint working, physical/emotional/spiritual needs, avoiding unnecessary interventions, carers and families involvement/support and patient choice. It is hoped that palliative and end of life services and Commissioners will consider the views, celebrate and share good practice and respond to patient recommendations by finding ways to improve practice where necessary.

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General details

Report title 
Patient experiences and views about palliative and end of life care
Local Healthwatch 
Healthwatch Herefordshire
Date of publication 
Monday, 1 January, 2018
Type of report 
Key themes 
Communication between staff and patients
Consent to care and treatment
Holistic support
Quality of care
Quality of treatment
Other information of note about this report 
Good Practice
Healthwatch reference number 

Methodology and approach

Was the work undertaken at the request of another organisation? 
Primary research method used 
Focus group
How was the information collected? 
Engagement Event

Details of health and care services included in the report

Secondary care services 
Care of the elderly
End of life care

Details of people who shared their views

Number of people who shared their views 
Does the information include public's views? 
Does the information include carer's, friend's or relative's views? 
Not known
Does the information include staff's views? 
What was the main sentiment of the people who shared their views? 

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Does the information contain a response from a provider? 
Not applicable
Is there evidence of impact in the report? 
Is there evidence of impact external to the report? 
Not known

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.