Patient experiences and views about palliative and end of life careDownload (PDF 1.17MB)
Summary of report contentIn 2018, Healthwatch Herefordshire conducted a report on patients’ experiences and views regarding palliative and end of life care. Fourteen individuals shared their experiences of palliative and end of life care and their personal views of what they would wish for at the end of their own lives. Six participated in focus groups, five responded to an online survey and three gave 1:1 feedback. The report will form part of the evidence that will be submitted by and gathered from representatives of local services connected with end of life and palliative care. The following settings were considered: Care at home, care homes, hospices and hospitals and many individuals related more than one experience. The stories gathered have been streamlined to form the overall recommendations of this report. The report makes many detailed recommendations relating to patient involvement in decisions about their care, care planning, patient access to high quality care, access to the appropriate services at the right time, funding, joint working, physical/emotional/spiritual needs, avoiding unnecessary interventions, carers and families involvement/support and patient choice. It is hoped that palliative and end of life services and Commissioners will consider the views, celebrate and share good practice and respond to patient recommendations by finding ways to improve practice where necessary.
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Patient experiences and views about palliative and end of life care
Type of report
Communication between staff and patients
Consent to care and treatment
Quality of care
Quality of treatment
Other information of note about this report
Healthwatch reference number
Was the work undertaken at the request of another organisation?
Primary research method used
How was the information collected?
Secondary care services
Care of the elderly
End of life care
Number of people who shared their views
Does the information include public's views?
Does the information include carer's, friend's or relative's views?
Does the information include staff's views?
What was the main sentiment of the people who shared their views?
Were recommendations made by local Healthwatch in the report?
Does the information contain a response from a provider?
Is there evidence of impact in the report?
Is there evidence of impact external to the report?