Summary of report contentIn 2017 Healthwatch Wakefield decided to investigate service provision and the experiences of assessment and treatment for Autistic Spectrum Disorder (ASD) in response to concerns raised by various sources, including parents. There were specific concerns that an increased investment in ASD services and assessment had resulted in minimal impact on waiting times. From May - July 2017, Healthwatch Wakefield engaged with parents and carers of children with Autism Spectrum Disorders (ASD) through voluntary and community sector groups which included the Beat Autism group, the Fusion Youth Club and Kidz Aware. The numbers of parents and carers interviewed were relatively small, with a total of nine interviewees. The data collected was qualitative in nature and the data was analysed and sorted into key themes which are detailed in the main body of the report. All feedback was from White British parents and carers. Overall, there was a feeling of lack of resource for the service which was displayed by the long waiting times for assessment, lack of support for parents and carers prior to and following diagnosis and access to specialist staff and the therapy support following a diagnosis. In addition to an increase in the support services available for parents and carers and their children there was also felt to be a need for training for staff working in autism services, both directly and indirectly, to be better able to manage interactions with patients, parents and carers and specifically around empathy and compassion being displayed by staff at all levels. The case studies show that the transition period between children's and adult services can be a particularly challenging time for parents and carers to navigate, and that communication between services and their service users/ carers is a key issue for improvement. Parent and carer suggestions for improvements are contained within the case studies and Healthwatch Enfield express their hope that these suggestions will feed in to a broader review of ASD services.
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Parent and carer experiences of Autism Spectrum Disorder Services
Date of publication
Friday, 1 December, 2017
Date evidence capture began
Monday, 1 May, 2017
Date evidence capture finished
Monday, 31 July, 2017
Type of report
Communication between staff and patients
Consent to care and treatment
Continuity of care
Service delivery organisation and staffing
Waiting times and lists for treatment
Other information of note about this report
Healthwatch reference number
Was the work undertaken at the request of another organisation?
Primary research method used
How was the information collected?
If an Enter and View methodology was applied, was the visit announced or unannounced?
Mental health services
Learning disability service
Community based services for people with a learning disability
Conditions or diseases
Types of disabilities
Learning or understanding or concentrating
Types of long term conditions
What type of pregnancy or maternity themes are included in the report
Number of people who shared their views
Specific ethnicity if known
Does the information include public's views?
Does the information include carer's, friend's or relative's views?
Does the information include staff's views?
Types of health and care professionals engaged
Does the information include other people's views?
What was the main sentiment of the people who shared their views?
Were recommendations made by local Healthwatch in the report?
Does the information contain a response from a provider?
Is there evidence of impact in the report?
Is there evidence of impact external to the report?