Mind the gap - understanding the needs of South Asian unpaid carers

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Summary of report content

Frimley Health and Care, Frimley Clinical Commissioning Group (CCG) and the Royal Borough of Windsor and Maidenhead have secured funding to further understand and assess the needs of South Asian Carers in the Royal Borough of Windsor and Maidenhead and have approached Healthwatch Windsor, Ascot and Maidenhead to undertake this work.  They developed two surveys and ran focus groups.  They spoke to 28 people.

The majority of carers are caring for adults and over 50% defined the cared for as a family member. Most carers are women (86%) and over the age of 50.  Over half haven’t registered as a carer with their GP and a similar proportion haven’t had a local authority carers assessment undertaken.

Over 86% of unpaid carers report that they are unable to access carer support services. Reasons for not doing so include:

  • limited information available to carers of what support is available and/or that information is not reaching them
  • Where unpaid carers are aware of services available, they are unable to access due to issues such as lack of respite and travel costs.

Carers report that they have unmet needs and require support with; meeting their own health needs, accessing respite, advice and information on support available and getting help with prescriptions/medications.

Unpaid carers generally don’t define themselves as carers. They need:

  • Women only, culturally specific places to meet and support each other that are free to access and easy to get to (supported travel)
  • Help with signposting to services
  • Information about services available to them
  • Help with language skills
  • Help with IT skills and access to IT resources
  • Support and advice in respect to health and wellbeing
  • Respite

The report contains 7 recommendations.

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General details

Report title 
Mind the gap - understanding the needs of South Asian unpaid carers
Local Healthwatch 
Healthwatch Windsor, Ascot & Maidenhead
Date of publication 
Thursday, 28 July, 2022
Date evidence capture began 
Saturday, 1 January, 2022
Date evidence capture finished 
Saturday, 30 April, 2022
Key themes 
Holistic support
Information providing
Lifestyle and wellbeing

Methodology and approach

Was the work undertaken at the request of another organisation? 
Yes
What type of organisation requested the work 
Service Provider
Primary research method used 
Focus group
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Primary care services 
GP practice
Social care services 
Adult social care

Details about conditions and diseases

What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Number of people who shared their views 
28
Age group 
All people 18 and over
Gender 
Female
Ethnicity 
Asian / Asian British
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
Yes
Is there evidence of impact external to the report? 
Not known
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.