Making York work for people with dementia

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Summary of report content

Healthwatch York conducted a focus groups with 7 people caring for those with dementia and with 13 people living with dementia. This investigation was run in partnership with York Minds & Voice Dementia Forum. Surveys were also distributed to key dementia support organisations in York, but only a small volume were returned.

A number of key themes were identified from the meetings. For example, everyone's experience of dementia is unique and there is a growing desire for people with dementia to share their experiences and engage with others. It was found that diagnosis is vital, but experience of this is inconsistent and that people with dementia were very keen to support GPs to understand the importance of diagnosis. Participants also highlighted that being active and involved while feeling as if their voices are being heard, has a positive impact on health. This is because positive meaningful activity for people living with dementia helps them maintain their skills, feel connected, and continue to enjoy life. The work to address stigma, improve understanding, and enable people to be dementia friendly is vital as everyone has a role to play in making life better for people with dementia to help create communities that are better for us all. 

A number of recommendations were made and aimed at a range of key stakeholders, including Health and Wellbeing Board, York CVS and the Dementia Action Alliance. Recommendations included that awareness of dementia should be introduced to school curriculums and contracting arrangements; and that consideration for increasing advocacy, mediation and support for couples and families to support them through the changing relationship dynamics.

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General details

Report title 
Making York work for people with dementia
Local Healthwatch 
Healthwatch York
Date of publication 
Wednesday, 1 March, 2017
Type of report 
Report
Key themes 
Access
Communication between staff and patients
Diagnosis
Engagement
Holistic support
Information providing
Lifestyle and wellbeing
Support
Healthwatch reference number 
Rep-4608

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
Primary research method used 
Focus group
How was the information collected? 
Engagement Event
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Primary care services 
GP practice

Details about conditions and diseases

Types of long term conditions 
Alzheimer’s disease or dementia

Details of people who shared their views

Number of people who shared their views 
20
Age group 
All
Gender 
All
Ethnicity 
All
Specific ethnicity if known 
All
Sexual orientation 
NA
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
Does the information include other people's views? 
No
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
Yes
Is there evidence of impact external to the report? 
No
What type of impact was determined? 
Network related impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.