A long road to: The views of people with personality disorders about their experiences of treatment and services in Dorset, Hampshire and Isle of Wight

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Summary of report content

During the summer of 2019, Healthwatch Dorset, Hampshire, Isle of Wight, Portsmouth and Southampton engaged with people who have been diagnosed with a borderline personality disorder (BPD) or emotionally unstable personality disorder (EUPD) and their carers to ask about their experiences of using mental health services. 

They interviewed 19 people, who had recently received therapy or had been recently discharged from their therapy. Their stories are about the treatment they have received over a period of years, which includes the barriers to and frustrations with accessing the support, information and treatment they needed. People reported finding it difficult to access an initial referral to a community mental health team or a psychiatric assessment without having it escalated by a crisis or serious incident or self-harm.  Lack of coordination and being listened to also affected their ability to get the support they needed. However when given treatment, the impact is positive. People reported having more control of their lives and feeling more optimistic about their futures. 

Carers noted there is little support or information easily available for them to help them manage sometimes very challenging situations and feel often ignored as key people in care planning.

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General details

Report title 
A long road to: The views of people with personality disorders about their experiences of treatment and services in Dorset, Hampshire and Isle of Wight
Local Healthwatch 
Healthwatch Dorset
Healthwatch Hampshire
Healthwatch Isle of Wight
Healthwatch Portsmouth
Healthwatch Southampton
Date of publication 
Monday, 2 September, 2019
Date evidence capture began 
Wednesday, 1 July, 2020
Date evidence capture finished 
Monday, 3 August, 2020
Type of report 
Patient experience
Key themes 
Access
Admission
Communication between staff and patients
Information providing
Quality of care
Quality of treatment
Other information of note about this report 
Careplan

Methodology and approach

Was the work undertaken at the request of another organisation? 
Yes
What type of organisation requested the work 
Other (please specify)
Primary research method used 
Structured interview
How was the information collected? 
Meeting
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Mental health services 
Depression and anxiety service
Mental health crisis service
Mental health recovery service

Details about conditions and diseases

Types of disabilities 
Mental health
Types of long term conditions 
Mental health condition
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Age group 
18-24 years
25-64 years
Gender 
All
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
Does the information include other people's views? 
No
What was the main sentiment of the people who shared their views? 
Mixed

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.