Learning disability - the carer's voice

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Summary of report content

Healthwatch Torbay carried out a survey to find out about the issues faced by carers of people with learning disabilities. The survey ran from mid-February to mid-March 2021. At this time Carers had provided 24/7 care for a long period of time, during the national lock-down put in place to suppress coronavirus transmission.

The key findings from their research are:

  • Ineffective communication leads to lack of trust in the relationship between Adult Social Care and the Carer.
  • There is a lack of clarity about the invoicing process and in the explanation of charges and errors.
  • Carers often feel insensitivity towards their stress and the impact on the household, especially when they care for someone with challenging behaviour.
  • There is no explicit co-production process with the service providers, especially when inadequate day service accommodation requires changes.
  • Carers feel that service providers do not adequately recognize their knowledge and experience in the development of person-centred care for the cared-for person.

The report contains suggestions for the next lines of enquiry, five principles for good practice in the handling of complaints and response from Torbay Council’s Adult Social Care Services.

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General details

Report title 
Learning disability - the carer's voice
Local Healthwatch 
Healthwatch Torbay
Date of publication 
Monday, 19 July, 2021
Date evidence capture began 
Monday, 15 February, 2021
Date evidence capture finished 
Monday, 15 March, 2021
Key themes 
Communication between staff and patients
Complaints procedure
Engagement
Information providing
Other information of note about this report 
Carers

Methodology and approach

Was the work undertaken at the request of another organisation? 
Yes
What type of organisation requested the work 
Voluntary and Community Sector
If this work has been done in partnership, who is the partner? 
None
Primary research method used 
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Social care services 
Adult social care
Day care (social care services)

Details of people who shared their views

Number of people who shared their views 
12
Age group 
Not known
Gender 
Not known
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
No
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
Types of health and care professionals engaged 
N/A
What was the main sentiment of the people who shared their views? 
Negative

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
Yes action has been taken or promised
Is there evidence of impact in the report? 
Yes
Is there evidence of impact external to the report? 
No
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.