Integration Index - young people and mental health as they become an adult

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Summary of report content

Healthwatch West Sussex produced a Health and Care Experience profile about young people transitioning from children’s to adult mental health services.

This was part of a project led by Healthwatch England and NHS England to develop a qualitative methodology as part of the Local Integration Index. Eight local Healthwatch piloted this methodology by focussing on particular local groups with experiences of care across several health and care services. This methodology can be used to ensure people’s experiences of integration are used by local systems to track how services are working together locally.

In this report, Healthwatch West Sussex look at national and local data on the service people in this situation should expect and what they actually receive, including their own.  They undertook a focus group which 7 people attended and a staff survey of a local college to which 29 people responded.

They found that some young people found it difficult to be involved in their own care due to low self esteem. GPs need to have ‘deeper conversations’ with young people who present with mental health concerns so that they gain a sense of supported understanding of their needs. Teachers need more training to identify student with poor mental health. The system needs to recognise it can feel intimidating to speak to adults/teachers/professionals. Young people said that there is a need to be supported informally by someone with empathy who is relatable and closer to them in age.

They were particularly concerned not to have to start over and over again, retelling their experience.  They talked about the impact of being without support for long periods of time. Most of the staff surveyed had had negative experience of young people transitioning to adult services when they reached 18.

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General details

Report title 
Integration Index - young people and mental health as they become an adult
Local Healthwatch 
Healthwatch West Sussex
Date of publication 
Friday, 11 June, 2021
Date evidence capture began 
Friday, 1 January, 2021
Date evidence capture finished 
Wednesday, 31 March, 2021
Key themes 
Communication between staff and patients
Continuity of care
Health inequalities
Integration of services
Lifestyle and wellbeing
Quality of care
Waiting times and lists for treatment

Methodology and approach

Was the work undertaken at the request of another organisation? 
What type of organisation requested the work 
Other government body
If this work has been done in partnership, who is the partner? 
NHS England and Healthwatch England
Primary research method used 
Focus group
If an Enter and View methodology was applied, was the visit announced or unannounced? 

Details of health and care services included in the report

Mental health services 
Child and adolescent mental health services (CAMHS)
Community mental health team (CMHT)

Details about conditions and diseases

Types of disabilities 
Mental health
Types of long term conditions 
Mental health condition

Details of people who shared their views

Number of people who shared their views 
Age group 
Not known
Not known
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Does the information include carer's, friend's or relative's views? 
Does the information include staff's views? 
What was the main sentiment of the people who shared their views? 

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Does the information contain a response from a provider? 
Not applicable
Is there evidence of impact in the report? 
Not applicable
Is there evidence of impact external to the report? 
Not applicable

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.