A good send off? Patients' and families' experiences of End of Life Care - one year on

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Summary of report content

Healthwatch Brighton and Hove undertook a review of their report on end of life care which was published in March 2020.

Since the research took place, the Covid-19 pandemic has highlighted the need for good end of life care, but it has also meant that some of the recommendations made in the previous report haven’t been implemented.

The report assesses progress against the ten recommendations made in the original report and sets out what further action Healthwatch Brighton & Hove intend to take on this topic.

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General details

Report title 
A good send off? Patients' and families' experiences of End of Life Care - one year on
Local Healthwatch 
Healthwatch Brighton And Hove
Date of publication 
Friday, 23 April, 2021
Date evidence capture began 
Sunday, 1 March, 2020
Date evidence capture finished 
Wednesday, 31 March, 2021
Key themes 
Communication between staff and patients
Consent to care and treatment
Holistic support
Lifestyle and wellbeing
Quality of care
Quality of staffing
Service delivery organisation and staffing

Methodology and approach

Was the work undertaken at the request of another organisation? 
Primary research method used 

Details of health and care services included in the report

Secondary care services 
Discharge lounge
End of life care
Social care services 
Hospice services at home
Community services 
Community healthcare and nursing services
Urgent and emergency care services 
Ambulance services

Details of people who shared their views

Number of people who shared their views 
Not applicable
Age group 
Not known
Not known
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Does the information include carer's, friend's or relative's views? 
Does the information include staff's views? 
What was the main sentiment of the people who shared their views? 
Not known

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Does the information contain a response from a provider? 
Yes action has been taken or promised
Is there evidence of impact in the report? 
Is there evidence of impact external to the report? 
Not known
What type of impact was determined? 
Tangible impact (not cost related)

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.