Fibromyalgia report

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Summary of report content

This report was produced by Healthwatch Derbyshire to highlight the thoughts of people diagnosed with fibromyalgia. Two engagement events were held to obtain their comments. Participants at the engagement sessions were not asked specific questions, but instead were invited to talk more generally about their experiences of getting a diagnosis of their condition, support from health professionals, accessing treatment and accessing other forms of support, including support groups. Key findings Lack of awareness of fibromyalgia among some health professionals Dignity and respect is not always given to patients Fibromyalgia diagnosiso No clear pathway Difficulties in accessing rheumatologists Lack of on-going support from rheumatologists Lack of consistency and choice across services Difficulties in accessing appropriate medication to meet people's needs Mental health is often detrimentally effected by fibromyalgia Lack of support for carers There is a financial impacton people with fibromyalgia as they may be unable to work full time. Often their partners are also unable to work full time as they are a carer. Recommendations were made to service providers and responses were received from Derbyshire Community Health Service NHS Foundation Trust and Royal Derby Teaching Hospital NHS Foundation Trust.

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General details

Report title 
Fibromyalgia report
Local Healthwatch 
Healthwatch Derbyshire
Date of publication 
Wednesday, 22 March, 2017
Date evidence capture began 
Sunday, 1 January, 2017
Date evidence capture finished 
Tuesday, 28 February, 2017
Type of report 
Report
Patient experience
Key themes 
Access
Communication between staff and patients
Diagnosis
Holistic support
Information providing
Lifestyle and wellbeing
Quality of appointment
Quality of care
Quality of treatment
Referrals
Staff attitudes
Staff training
Support
Other information of note about this report 
Carers
Healthwatch reference number 
Rep-1175

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
Primary research method used 
Engagement event
How was the information collected? 
Engagement Event

Details of health and care services included in the report

Primary care services 
GP practice
Secondary care services 
Acute services without overnight beds / listed acute services with or without overnight beds
Physiotherapy
Rheumatology
Community services 
Community healthcare and nursing services

Details about conditions and diseases

Conditions or diseases 
Chronic fatigue syndrome
Musculosceletal conditions
Types of disabilities 
Long term condition
Types of long term conditions 
Another long-term condition

Details of people who shared their views

Number of people who shared their views 
22
Age group 
Not known
Gender 
Not known
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
Yes
Types of health and care professionals engaged 
Service manager
Does the information include other people's views? 
No
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
Yes action has been taken or promised
Is there evidence of impact in the report? 
Yes
Is there evidence of impact external to the report? 
No
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.