Summary of report contentThis report was produced by Healthwatch Derbyshire to highlight the thoughts of people diagnosed with fibromyalgia. Two engagement events were held to obtain their comments. Participants at the engagement sessions were not asked specific questions, but instead were invited to talk more generally about their experiences of getting a diagnosis of their condition, support from health professionals, accessing treatment and accessing other forms of support, including support groups. Key findings Lack of awareness of fibromyalgia among some health professionals Dignity and respect is not always given to patients Fibromyalgia diagnosiso No clear pathway Difficulties in accessing rheumatologists Lack of on-going support from rheumatologists Lack of consistency and choice across services Difficulties in accessing appropriate medication to meet people's needs Mental health is often detrimentally effected by fibromyalgia Lack of support for carers There is a financial impacton people with fibromyalgia as they may be unable to work full time. Often their partners are also unable to work full time as they are a carer. Recommendations were made to service providers and responses were received from Derbyshire Community Health Service NHS Foundation Trust and Royal Derby Teaching Hospital NHS Foundation Trust.
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Date of publication
Wednesday, 22 March, 2017
Date evidence capture began
Sunday, 1 January, 2017
Date evidence capture finished
Tuesday, 28 February, 2017
Type of report
Communication between staff and patients
Lifestyle and wellbeing
Quality of appointment
Quality of care
Quality of treatment
Other information of note about this report
Healthwatch reference number
Was the work undertaken at the request of another organisation?
Primary research method used
How was the information collected?
Primary care services
Secondary care services
Acute services without overnight beds / listed acute services with or without overnight beds
Community healthcare and nursing services
Conditions or diseases
Chronic fatigue syndrome
Types of disabilities
Long term condition
Types of long term conditions
Another long-term condition
Number of people who shared their views
Does the information include public's views?
Does the information include carer's, friend's or relative's views?
Does the information include staff's views?
Types of health and care professionals engaged
Does the information include other people's views?
What was the main sentiment of the people who shared their views?
Were recommendations made by local Healthwatch in the report?
Does the information contain a response from a provider?
Yes action has been taken or promised
Is there evidence of impact in the report?
Is there evidence of impact external to the report?
What type of impact was determined?