Experiences of the transition to adult services, for young people with Type 1 Diabetes

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Summary of report content

Healthwatch Blackburn with Darwen and Lancashire were asked by the East Lancashire Hospital Trust (ELHT) to conduct a survey focusing on the experiences of young people diagnosed with Type 1 Diabetes (T1D). In total, Healthwatch spoke to 34 young people. They wanted to investigate their experiences of the transition to adult services, as it falls during a time when they may be experiencing other life changes.

77% of the respondents to this survey found the transition to adult services to be a positive experience. 62% felt positive about attending appointments, 85% said nothing put them off attending and everyone understood the purpose of the appointments, although 48% felt anxious prior to attending their appointments. There were four individual respondents who stood out as being both anxious about their appointments and being aware that they were not managing their T1D. Most respondents are aware when their T1D is under control and are comfortable and confident enough to be honest in the Ready, Steady, Go questionnaire. However, one in three download their meter readings and one in three are worried about their future living with T1D. Nurses and Doctors/Consultants are the most valued in providing support and respondents also value nurse and Doctor/Consultant led appointments. 94% felt that appointments focus on their personal needs.

Education and information that respondents would like to see tended to focus on advice and guidance for their future. A ‘perfect service’ for the young people who answered this questionnaire, would consist of quick, timely and local appointments with all the relevant staff present, where everyone was understanding, friendly and caring.

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General details

Report title 
Experiences of the transition to adult services, for young people with Type 1 Diabetes
Local Healthwatch 
Healthwatch Blackburn with Darwen
Healthwatch Lancashire
Date of publication 
Thursday, 20 August, 2020
Date evidence capture began 
Tuesday, 1 October, 2019
Date evidence capture finished 
Tuesday, 31 March, 2020
Type of report 
Report
Key themes 
Booking appointments
Communication between staff and patients
Information providing
Quality of care
Support
Healthwatch reference number 
Rep-7734

Methodology and approach

Was the work undertaken at the request of another organisation? 
Yes
What type of organisation requested the work 
Other (please specify)
If this work has been done in partnership, who is the partner? 
East Lancashire Hospital Trust (ELHT)
Primary research method used 
Survey
How was the information collected? 
Research
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Secondary care services 
Diabetic medicine

Details about conditions and diseases

Conditions or diseases 
Diabetes and other endocrinal, nutriotional and metabolic conditions
Types of long term conditions 
Diabetes
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Number of people who shared their views 
34
Age group 
All people under the age of 18
Gender 
All
Ethnicity 
All
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
No
Does the information include staff's views? 
No
Does the information include other people's views? 
No
What was the main sentiment of the people who shared their views? 
Positive

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
Yes
Is there evidence of impact external to the report? 
Not known
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.