Dying Matters Week 2021 - Palliative and End of Life Care Survey Final report

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Summary of report content

Healthwatch Cheshire East and Healthwatch Cheshire West and Chester undertook research on palliative and end of life care.  272 people completed a survey.

Most of those who answered the survey had some or more knowledge of palliative care or end of life care. This was particularly marked for people with professional experience.  When asked where people’s knowledge came from, the option of a family member receiving (or having received) palliative and end of life care scored highest, followed by “general knowledge”.

Almost all recognised that hospices provide palliative and end of life care.  Over half knew that counsellors may be involved in supporting people receiving palliative and end of life care.

Everyone said that control of symptoms at home and support to give carers a break were very important or important aspects of care.

Almost nine in ten respondents felt that we don’t discuss death and dying enough.

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General details

Report title 
Dying Matters Week 2021 - Palliative and End of Life Care Survey Final report
Local Healthwatch 
Healthwatch Cheshire East
Healthwatch Cheshire West and Chester
Date of publication 
Monday, 16 August, 2021
Date evidence capture began 
Monday, 10 May, 2021
Date evidence capture finished 
Sunday, 16 May, 2021
Key themes 
Holistic support
Information providing
Lifestyle and wellbeing

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
Primary research method used 
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Secondary care services 
End of life care
Social care services 
Hospice services
Hospice services at home

Details of people who shared their views

Number of people who shared their views 
272
Age group 
Not known
Gender 
Not known
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
Yes
Types of health and care professionals engaged 
All care professionals
What was the main sentiment of the people who shared their views? 
Neutral

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
No
Is there evidence of impact external to the report? 
Not known

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.