Dementia Strategy refresh 2013, Devon

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Summary of report content

Healthwatch Devon was approached via its Engagement Gateway with a view to enabling the engagement of service users, the public and carers in a “light touch sense check” of the strategy to inform a final draft update for consideration by the Devon Health and Wellbeing Board. In discussion with the commissioner it was decided that Healthwatch Devon should facilitate a bespoke Focus Group, co-produced with the commissioning team. In designing the Focus Group process, Healthwatch Devon were mindful to take on board that this was a high level strategy which would be underpinned by more local and detailed action plans, and as such commissioners did not require a full consultation at this stage. The findings from the focus group and community feedback was that further development and implementation of the Devon Dementia Strategy should be undertaken as a co-production between Devon County Council, Clinical Commissioning Groups, and key stakeholders in the voluntary community sector (including service users and carers). Devon County Council and Clinical Commissioning Groups' remit should include a co-ordinating role to ensure better joining up and adding of value between the statutory bodies, providers, and the voluntary – community sector; an awareness raising and educational campaign - both for the public to increase their understanding of dementia, its incidence and recognition, diagnosis and treatment options, being more dementia friendly and specialist support available and secondly, targeting the clinical practitioners who come into contact with it e.g. GPs, health workers, social care assessors, personal budget co-ordinators etc. It was also felt that more awareness and understanding would be helpful, as it helps the early diagnoses if there is higher awareness of the illness. Feedback also noted that Dementia is not well known in the Philippines. Some Filipino's working in care homes are working with people with Dementia and so are more aware of the illness, but cultural understanding needs to be addressed. The cultural groups reported that when people go into hospital the food may be different to what they are used to and that some cultures may hide that there is a problem and don't access the help they need and require. When accessing a service some people may not ask for an interpreter because they don't realise they can ask for one. The group also suggested that when a family does not accept Dementia as an illness in the family or community, the guarantee of confidentiality from external services and building trust can be helpful. The feedback and responses to the topics discussed in the groups are transcribed and recorded in the report and some suggested key messages have been included along with feedback from other stakeholders who are currently working on Dementia Friendly Community initiatives.

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General details

Report title 
Dementia Strategy refresh 2013, Devon
Local Healthwatch 
Healthwatch Devon
Date of publication 
Sunday, 1 December, 2013
Date evidence capture began 
Friday, 1 November, 2013
Date evidence capture finished 
Saturday, 30 November, 2013
Type of report 
Report
Key themes 
Access
Administration
Communication between staff and patients
Consent to care and treatment
Continuity of care
Diagnosis
Engagement
Food and nutrition
Health and safety
Holistic support
Information providing
Integration of services
Interpreters
Lifestyle and wellbeing
Support
Healthwatch reference number 
Rep-5034

Methodology and approach

Was the work undertaken at the request of another organisation? 
Yes
What type of organisation requested the work 
Local Council
If this work has been done in partnership, who is the partner? 
Devon Senior Voice‟s Health and Social Care Forum,Carers Voice, and Hikmat
Primary research method used 
Focus group
How was the information collected? 
Engagement Event
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Social care services 
Adult social care

Details about conditions and diseases

Conditions or diseases 
Neurological conditions
Types of disabilities 
Memory
Types of long term conditions 
Alzheimer’s disease or dementia
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Number of people who shared their views 
28
Age group 
Not known
Gender 
All
Ethnicity 
Mixed / multiple ethnic groups
Sexual orientation 
Not known
Other population characteristics 
People who are geographically isolated
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
Yes
Types of health and care professionals engaged 
All care professionals
Service manager
Does the information include other people's views? 
Yes
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
Not known
Is there evidence of impact external to the report? 
Not known
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.