Children and young people with long term conditions

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Summary of report content

Healthwatch Bradford, in partnership with Barnardo’s, explored the mental health support available for children and young people with long term physical conditions. During September and October 2015, the team gathered feedback from 25 people aged 11 to 25 years old through a discussion group and an online questionnaire. Their views and experiences of mental health services in relation to their long-term condition and the impact on their wellbeing were gathered. The report indicates that children and young people’s long term physical conditions can have a significant impact on their emotional wellbeing and that support is not readily available. While the school nurse and community organisations were praised for being helpful, and CAMHs service is widely recognised, the respondents reported issues with waiting times to get an appointment. Generally, children and young people with long term conditions felt that mental health support was not provided alongside their care for their physical condition, but rather had to actively seek information about mental health support services themselves. The feedback revealed that patients felt that there should be holistic support where their physical and mental wellbeing are taken into account together. Healthwatch Bradford made number of recommendations: All professions to consider emotional wellbeing when assessing and planning support services, in doing so, offer a mix of tailored services recognising both physical and mental health conditions. The report also suggested that commissioners regard the waiting times and range of services needed for young people, and for better provision of accessible information that can help support young people and families. The report did not include a response from the service provider.

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General details

Report title 
Children and young people with long term conditions
Local Healthwatch 
Healthwatch Bradford
Date of publication 
Friday, 19 February, 2016
Date evidence capture began 
Monday, 28 September, 2015
Date evidence capture finished 
Friday, 2 October, 2015
Type of report 
Report
Key themes 
Booking appointments
Continuity of care
Health promotion
Holistic support
Information providing
Integration of services
Lifestyle and wellbeing
Quality of treatment
Support
Waiting times and lists for treatment
Healthwatch reference number 
Rep-5465

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
Primary research method used 
Focus group
Survey
How was the information collected? 
Research

Details of health and care services included in the report

Mental health services 
Child and adolescent mental health services (CAMHS)
Community services 
Community based services for people with mental health needs

Details about conditions and diseases

Types of disabilities 
Mental health
Long term condition
Types of long term conditions 
Mental health condition

Details of people who shared their views

Number of people who shared their views 
25
Age group 
All
Gender 
All
Ethnicity 
All
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
No
Does the information include staff's views? 
No
Does the information include other people's views? 
No
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
No
Is there evidence of impact external to the report? 
No

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.