Care.Data survey report, Devon

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Summary of report content

Healthwatch Devon initiated a rapid response survey through February 2014, in response to growing concerns about the information sharing initiative 'care.data' developed by NHS England. In January 2014, NHS England announced that it would be distributing leaflets to all households in England, which would explain the benefits of sharing the information that is collected about them in relation to the care they receive. The ‘Better Information Means Better Care’ leaflet was designed to inform patients and the public that sharing the information that is held about their care could help the NHS to ensure that the quality and safety of services was consistent across the country. It could also highlight areas where further research or investment might be required, for certain conditions or diseases. After the scheme was announced, concerns were raised almost immediately from members of the public as well as GPs, who were worried about where this information would be shared and with which organisations. Many local Healthwatch organisations escalated the concerns that they were hearing to Healthwatch England. At the beginning of February 2014, Healthwatch Devon started to hear from people who had not received their leaflet on the care.data scheme. Devon Senior Voice, a key service delivery partner to Healthwatch Devon, set up public meetings for people to share their views and concerns. At the same time, Healthwatch Devon wanted to ask people whether they had received the leaflet, if so, whether they understood it and if they are would consent to their medical data being shared as part of the care.data scheme. As a result of concerns raised to NHS England, the scheme rollout was deferred until the Autumn of 2014 and Healthwatch Devon said they would take a lead from Healthwatch England, which will be actively seeking to influence NHS England's attempts to produce better and more effective information for the relaunch of care.data in the autumn. In order to do this they shared the findings of the survey with Healthwatch England as well as the local NHS Commissioners.

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General details

Report title 
Care.Data survey report, Devon
Local Healthwatch 
Healthwatch Devon
Date of publication 
Saturday, 1 March, 2014
Date evidence capture began 
Saturday, 1 February, 2014
Date evidence capture finished 
Friday, 28 February, 2014
Type of report 
Report
Key themes 
Communication between staff and patients
Consent to care and treatment
Digitalisation of services
Information providing
Patient records
Public involvement
Healthwatch reference number 
Rep-5075

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
What type of organisation requested the work 
N/A
If this work has been done in partnership, who is the partner? 
Senior Voice Devon
Primary research method used 
Survey
How was the information collected? 
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details about conditions and diseases

Types of disabilities 
No
Types of long term conditions 
Not known
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Number of people who shared their views 
97
Age group 
Not known
Gender 
Not known
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
Not applicable
Does the information include staff's views? 
Not applicable
Types of health and care professionals engaged 
N/A
Does the information include other people's views? 
Not applicable
What was the main sentiment of the people who shared their views? 
Negative

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
No
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
No
Is there evidence of impact external to the report? 
Not known

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.