Care for Carers: Hospital care for people with Dementia and their carers

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Summary of report content

In October 2013 Healthwatch Bradford and District identified a need to undertake a review into the standards of care provided in hospitals across Bradford District for people living with dementia and their carers. Healthwatch Bradford and District aimed to get a better picture of how carers’ needs were being met, to understand if the environment was suitable and to help identify solutions that would create a more positive experience. Healthwatch Bradford and District wanted to make it easy for people to contribute to the review so talked to carers at five different locations across Bradford, working with a community organisation called The Memory Club which offers social support to both carers and people living with dementia from across the district. The groups meet every two weeks in Keighley, Saltaire, Shipley and Idle. They also spoke to carers attending the Wellbeing Cafe at Grange Interlink Community Centre, which supports carers from a South Asian background. Some of the people spoken to were positive about the communication and support that they had received as a carer. However others gave accounts of poor communication and gave examples of how failing to involve the carer in planning and providing care had caused difficulties. Many carers said that they felt they were the experts on the patient’s care yet were not involved enough or listened to by staff. Whilst Healthwatch Bradford and District do not suggest that the person with dementia is excluded from conversations and consultations, they felt it was clear from conversations with carers it would be helpful to involve them too. It is also important to understand that the different stages of dementia will require a different level of communication. Observations made by carers in the report highlight the need to get better at involving carers with developments in research and share the rationale relating to changes to the physical environment. It also illustrates again the need for an increased awareness and training across the Trusts in dementia. Healthwatch Bradford and District plans to re-visit the experiences, voices and views of carers of people living with dementia in the future, once actions have been implemented, to see the impact of any changes.

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General details

Report title 
Care for Carers: Hospital care for people with Dementia and their carers
Local Healthwatch 
Healthwatch Bradford
Date of publication 
Wednesday, 12 March, 2014
Date evidence capture began 
Friday, 1 November, 2013
Date evidence capture finished 
Friday, 31 January, 2014
Type of report 
Report
Key themes 
Access
Administration
Admission
Building and facilities
Communication between staff and patients
Consent to care and treatment
Continuity of care
Decor
Diagnosis
Engagement
Food and nutrition
Health inequalities
Health promotion
Health protection
Holistic support
Lifestyle and wellbeing
Quality of care
Service delivery organisation and staffing
Staff attitudes
Support
Healthwatch reference number 
Rep-5080

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
What type of organisation requested the work 
N/A
Primary research method used 
Survey
User stories
How was the information collected? 
Outreach
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Secondary care services 
Acute services with overnight beds
Dementia
Outpatients

Details about conditions and diseases

Conditions or diseases 
Neurological conditions
Types of disabilities 
Memory
Types of long term conditions 
Alzheimer’s disease or dementia
What type of pregnancy or maternity themes are included in the report 
N/A

Details of people who shared their views

Number of people who shared their views 
30
Age group 
Not known
Gender 
Not known
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Not known
Does the information include carer's, friend's or relative's views? 
Yes
Does the information include staff's views? 
No
Types of health and care professionals engaged 
N/A
Does the information include other people's views? 
Not known
What was the main sentiment of the people who shared their views? 
Mixed

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
No
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
No
Is there evidence of impact external to the report? 
Not known
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.