10 key messages from the people of Rutland about dementia services

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Summary of report content

The remainder of this interim report describes the comments and evidence that lie behind each of these messages. Binding all ten messages together is the theme of the whole journey needing to be joined up into a coherent whole. 1.DECIDING TO SEEK A DIAGNOSIS - More could be done by organisations working together across the whole community to raise awareness of memory loss in Rutland and dispel the stigma and fear of " dementia". 2.GOING TO THE GP FOR HELP -GPs would welcome help to support families to come forward to seek a diagnosis. The Rutland diagnosis rate is still below target. 3.GETTING A DIAGNOSIS -There is lack of clarity about the many routes people can take to obtain a diagnosis. The system feels slow, cumbersome and confusing to those in it. 4.GETTING TREATMENT-Those getting treatment also found the system confusing and fragmented. 5.INFORMATION -Getting the right information tailored to each stage is very important but does not happen. 6.SUPPORT AT HOME AFTER STARTING TREATMENT (Clinical & Social) People feel that system of care coordinators is needed to help those less able to find their way around such a complex mix of statutory, voluntary and commercial services. Linking these services in a more cohesive way is now being addressed and is vital. 7.CARE HOMES & DOMICILIARY CARE -Relatives struggle to find residential and domiciliary care of suitable quality. They feel this shortage will get worse as demand rises and if new services are not provided. 8.SHORT BREAKS -Carers value respite care and short breaks but it can be stressful for all concerned. Carers would like more flexibility both in the packages on offer and financial arrangements. 9.HOSPITAL - Hospital admission is best minimised for those with dementia but remains the largest source of referral for diagnosis. Considerable improvements have been initiated with government funding in surrounding hospitals and need to be evaluated. People in Rutland attend many different hospitals and the problems of delayed and inappropriate discharges continue to bedevil us. 10.END OF LIFE -We will be looking at end of life care for all people and have not yet undertaken this critical work.

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General details

Report title 
10 key messages from the people of Rutland about dementia services
Local Healthwatch 
Healthwatch Rutland
Date of publication 
Sunday, 1 May, 2016
Date evidence capture began 
Sunday, 1 May, 2016
Date evidence capture finished 
Sunday, 1 May, 2016
Type of report 
Report
Key themes 
Information providing
Public involvement
Healthwatch reference number 
Rep-6614

Methodology and approach

Was the work undertaken at the request of another organisation? 
No
What type of organisation requested the work 
Local Council
Primary research method used 
Consultation
How was the information collected? 
Consultation Responses
If an Enter and View methodology was applied, was the visit announced or unannounced? 
N/A

Details of health and care services included in the report

Social care services 
Adult social care

Details of people who shared their views

Number of people who shared their views 
Not known
Age group 
Not known
Gender 
Not known
Ethnicity 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Yes
Does the information include carer's, friend's or relative's views? 
No
Does the information include staff's views? 
No
Types of health and care professionals engaged 
N/A
Does the information include other people's views? 
No
What was the main sentiment of the people who shared their views? 
Neutral

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Yes
Does the information contain a response from a provider? 
No
Is there evidence of impact in the report? 
Yes
Is there evidence of impact external to the report? 
No
What type of impact was determined? 
Implied Impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
 
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
 
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.