‘Champions and challenges’: An in depth look at the health and social care experiences of those who have a learning disability and/or autism within Luton

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Summary of report content

Healthwatch Luton carried out a range of activities to understand the healthcare experiences of people with learning disabilities. They wanted to hear from people who were living independently or with caring responsibilities of those with learning disabilities in Luton. The activities included attending meetings and Boards on behalf of Healthwatch Luton, meeting with commissioners and key professionals in services and holding forums.

They identified some key issues which included lack of right staff at the right time to support individuals; very few parents and carers knew that children with learning disabilities ought to have an annual health check; difficulties in accessing services; confusing criteria and pathway to assessment services for children and young people, which confused a lot of parents; a lack of joined up approach to individuals’ care; unclear definition of learning disabilities and it was noted by parents and carers that their voices were not always listened to.

Having carried out this project, Healthwatch Luton have made some recommendations for health service providers, commissioners and practitioners within the Luton system.

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General details

Report title 
‘Champions and challenges’: An in depth look at the health and social care experiences of those who have a learning disability and/or autism within Luton
Local Healthwatch 
Healthwatch Luton
Date of publication 
Tuesday, 26 May, 2020
Date evidence capture began 
Thursday, 18 June, 2020
Date evidence capture finished 
Thursday, 18 June, 2020
Type of report 
Key themes 
Health promotion
Holistic support
Integration of services
Public involvement
Quality of care
Service delivery organisation and staffing
Healthwatch reference number 

Methodology and approach

Was the work undertaken at the request of another organisation? 
What type of organisation requested the work 
If this work has been done in partnership, who is the partner? 
Primary research method used 
Engagement event
How was the information collected? 
Engagement Event
If an Enter and View methodology was applied, was the visit announced or unannounced? 

Details of health and care services included in the report

Mental health services 
Learning disability service

Details of people who shared their views

Number of people who shared their views 
Age group 
Not known
Sexual orientation 
Not known
Does the information include public's views? 
Does the information include carer's, friend's or relative's views? 
Does the information include staff's views? 
Types of health and care professionals engaged 
Does the information include other people's views? 
What was the main sentiment of the people who shared their views? 

Outcomes and impact

Were recommendations made by local Healthwatch in the report? 
Does the information contain a response from a provider? 
Is there evidence of impact in the report? 
Is there evidence of impact external to the report? 
What type of impact was determined? 
Network related impact

Network Impact
Relationships that exist locally, regionally, nationally have benefited from the work undertaken in the report
Implied Impact
Where it is implied that change may occur in the future as a result of Healthwatch work. This can be implied in a provider  response, press release or other source. Implied impact can become tangible impact once change has occurred.
Tangible Impact
There is evidence of change that can be directly attributed to Healthwatch work undertaken in the report.